You have five minutes to leave if theres any possible way you are going to make it on time. You slip on your shoes, grab your jacket, your hands are full of bags and papers, Sammy's iPad under one arm, and you walk in to get him...
The once clean outfit that you had dressed him in an hour earlier to leave the house is soaked. There is a puddle on the floor. His entire bed is wet with urine and he smells like a port-a-potty. There's no getting out of the house on time.
Everything is put on hold. Sammy must be stripped - sometimes bathed - and redressed. The bed has to be unmade and washed. The floor needs to be mopped. The room needs to be aired out. And after all of this, you probably want another shower and a change of clothes.
And people wonder why my mom is always late. This is an every day occurrence - changing the sheets and redressing Sammy. Multiple times a day. But can you imagine how frustrating it can be if you get yourself and everyone else ready to go - and then everything falls apart in the last two minutes?
You were literally walking out the door and all of the efforts you have put into your departure during the past hour is now ruined. Go to jail, do not pass go, do not collect $200. Game over.
Autism from a sibling's point of view...
My name is Paige and I am 24 years old. I graduated from Towson University with a Psychology Bachelors Degree. I am now working towards my Master's in Education of Autism and other Pervasive Disorders at Johns Hopkins. I am also a Behavior Data Specialist at the Kennedy Krieger Institute Neurobehavioral Inpatient Unit. My younger brother, Sammy, is 19 and has Autism. He is completely non-verbal, unaware of safety, is not toilet trained, cannot get himself dressed, and has difficulty with everyday activities that we all take advantage of. He works harder every single day of his life than anyone I know and he always does it with a smile on his face. He is my true hero and inspiration and because of him, I have dedicated my life to advocating and creating opportunities for individuals with Autism. I hope that I can make him proud and this blog is just a small part of the awareness I hope I can create about Autism and support other siblings impacted by Autism. I love you Sammy - thank you for everything.