I meant to write about this about two weeks ago, but I have been deathly sick with pneumonia and haven't had the chance. A few weeks ago, my aunt and uncle were here from California visiting so I was home for the entire week. As much as I loved hanging out with my family (especially Sammy) all week,Autism really can be a psychotic bitch sometimes. One of the nights they were visiting, my mom ran a few errands so ultimately... my aunt and I were in charge. My brother, Jack, checked in on him after we had put Sammy to bed and he yelled down to tell us Sammy had pooped.
Now, its already out of the ordinary that we are changing a 15 year old boy's diaper -- however, Sammy's meds just got changed to help control his bad migraines. One of the lovely side effects is looser bowels. If I stopped there, it would be gross enough but I'm not. Sammy decided to take off his diaper after he had gone to the bathroom.
The poop was smeared all over his floor, covered him head to toe, and coated his sheets. EW!!!!!! Sadly, Jack and I have seen this happen before so we collected ourselves, got all the necessary materials to clean, and ran up there like routine. However, just as I am getting Sammy up to go take a shower, a migraine hit, and he began having a fit. This fit included biting me, biting himself, biting my aunt, and throwing himself around. I have been trained to put him into a restraint to help him calm down and keep him from hurting himself or anyone else. To be completely honest -- I didn't want to touch him because he was covered in poop. However, when I tried, his super freak strength activated and it was almost impossible. Once in the restraint, we had to wait almost 20 minutes for him to calm down before we could take him to the shower.
Once in the shower, my aunt and I scrubbed the floors, Jack changed the sheets... yeah, Autism is a psychotic bitch. Why did that happen? What was the point? Isn't it bad enough that he has to have someone change his diaper? Isn't it bad enough he had diarrhea on the floor? Why did he need to bite and rip his hands apart? It just makes no sense to me.
Autism from a sibling's point of view...
My name is Paige and I am 24 years old. I graduated from Towson University with a Psychology Bachelors Degree. I am now working towards my Master's in Education of Autism and other Pervasive Disorders at Johns Hopkins. I am also a Behavior Data Specialist at the Kennedy Krieger Institute Neurobehavioral Inpatient Unit. My younger brother, Sammy, is 19 and has Autism. He is completely non-verbal, unaware of safety, is not toilet trained, cannot get himself dressed, and has difficulty with everyday activities that we all take advantage of. He works harder every single day of his life than anyone I know and he always does it with a smile on his face. He is my true hero and inspiration and because of him, I have dedicated my life to advocating and creating opportunities for individuals with Autism. I hope that I can make him proud and this blog is just a small part of the awareness I hope I can create about Autism and support other siblings impacted by Autism. I love you Sammy - thank you for everything.