I have been back in MD since Monday, and Sammy was officially home on Tuesday. It has been hard for me not being able to see him everyday after I was just there spending almost every hour with him and my family for a week. I wish I could be there to help my mom, cook my family dinner, run errands, sit with Sammy when she needs a rest, watch TV with Sammy, hang out with Jack, etc. But I can't, I have to go back to school and work.
As much as I'd like to, I don't have the money or time to go home every night or commute to school while Sammy is recovering. So, I find myself wondering what I could do to help from two hours away? I want to be there for them as much as I can. Recovery is 4-6 weeks long.
Many of you have asked what you can do to help and I have come up with something we all can help with -- my mom is constantly watching Sammy and giving him meds... she has little time to sleep, let alone to cook and clean. I admire her dedication and love for Sammy. How is this woman still functioning after no sleep and all of this stress? Especially when she isn't just sitting around with Sammy, she is giving him meds, washing him, changing him, getting him up moving around, feeding him, etc. Anyways, I was wondering if there was anyone interested in bringing meals to my mom, Sammy, and Jack? I will be home this weekend and will be able to cook or go out and get them something, but I was really hoping some of you closer could help while I am away.
If anyone is interested, please coordinate/sign up on the Meal Train site
Click on the date you wish to make dinner and sign up by selecting "Book this date." You can sign in using Facebook or a quick registration. If you have issues, contact me through the "Contact" page on my blog and I can sign you up for an available day. Any drop off time is perfect and we aren't really that picky of eaters! Thank you SO MUCH to Kelly Pallis for helping organize all of this!
I cannot thank you enough for all of your prayers, thoughts, and everything you all have done.
Sammy has been sleeping since 8am -- thank god! The boy is finally getting some rest! He will eventually have someone from his school to help with lessons and will have OT and PT. He also has a special hospital bed so the boy doesn't pee on everything my mom owns (as if he already hasn't) and it'll make it a little easier.
Autism from a sibling's point of view...
My name is Paige and I am 24 years old. I graduated from Towson University with a Psychology Bachelors Degree. I am now working towards my Master's in Education of Autism and other Pervasive Disorders at Johns Hopkins. I am also a Behavior Data Specialist at the Kennedy Krieger Institute Neurobehavioral Inpatient Unit. My younger brother, Sammy, is 19 and has Autism. He is completely non-verbal, unaware of safety, is not toilet trained, cannot get himself dressed, and has difficulty with everyday activities that we all take advantage of. He works harder every single day of his life than anyone I know and he always does it with a smile on his face. He is my true hero and inspiration and because of him, I have dedicated my life to advocating and creating opportunities for individuals with Autism. I hope that I can make him proud and this blog is just a small part of the awareness I hope I can create about Autism and support other siblings impacted by Autism. I love you Sammy - thank you for everything.