I am pleased to let all of you know how outstanding Sammy is doing! The hospital bed has been out of our house and he has been up and around for about two weeks now. I am so proud of his progress he has made! I was home for my birthday on Sunday and he is back to his old tricks - listening to his iPad, laughing and smiling, walking around, and playing with his toys.
The handsome man is back in school and is still on medicine, but has proven that he still knows what to do, regardless of the surgery. He's back to using his iPad for requesting and even has made a little progress with toilet training at school! It was so great to see my guy laughing and playing with me on my birthday -- even though he kept pulling on my bracelets and screaming in the restaurant.
He obviously still feels pain, we can tell because he pushes our hands against his head and appears frustrated. His scar looks amazing and is barely noticeable with his hair!
On another note....... Many of you know that I am apart of the organization, PALS. This organization is a summer camp for young adults with Down Syndrome where they have the opportunity to build independence, create lifelong friendships, and have fun. I volunteer there every summer where I am uniquely paired with an amazing camper and I have the best time of my life. We are currently doing our fundraising campaign and I was wondering if any of you would be interested in donating? It would mean the world to me and would be able to help PALS grow as an life changing organization! Please visit my donation page, or contact me for more details. THANK YOU!!!!!
Please continue to keep Sammy in your prayers! Xo.
Autism from a sibling's point of view...
My name is Paige and I am 24 years old. I graduated from Towson University with a Psychology Bachelors Degree. I am now working towards my Master's in Education of Autism and other Pervasive Disorders at Johns Hopkins. I am also a Behavior Data Specialist at the Kennedy Krieger Institute Neurobehavioral Inpatient Unit. My younger brother, Sammy, is 19 and has Autism. He is completely non-verbal, unaware of safety, is not toilet trained, cannot get himself dressed, and has difficulty with everyday activities that we all take advantage of. He works harder every single day of his life than anyone I know and he always does it with a smile on his face. He is my true hero and inspiration and because of him, I have dedicated my life to advocating and creating opportunities for individuals with Autism. I hope that I can make him proud and this blog is just a small part of the awareness I hope I can create about Autism and support other siblings impacted by Autism. I love you Sammy - thank you for everything.